The actual day was yesterday — I started a post and babies woke up and and and…
Eight years ago
today yesterday, I got an official diagnosis of multiple sclerosis.
I’d been having symptoms for six months prior, and doctor visits and diagnostic workups for a couple. At each blood draw, MRI, and lumbar puncture, the providers rattled off lists of differential diagnoses they hoped to rule out (brain tumor, HIV, lupus, transverse myelitis, B12 deficiency, sarcoidosis…and yeah, MS) so it wasn’t exactly a huge surprise.
The biggest surprise was that nobody ever actually said, “EJ, you have MS.” There was no tearful meeting in the doctor’s fancy office, no fat acceptance envelope in the mail, opened with shaking hands.
The doctor ticked a box on the checkout sheet, and I scheduled my next MRI and started picking a DMD to try. I went home. I went back to work.
Life went on the same as always.
Life went on completely different.
Life went on.
And that’s about the grand sum of everything I’ve learned so far.
Life goes on until it doesn’t.
Here we are today.
We’re the lucky ones, even when we forget we are.
Thanks for being here with me, today.